Lito Sousa: “From yesterday to today, he has already lost more of his vision,” says wife in urgent appeal for inclusion in clinical studies.

• The wife of influencer Lito Sousa released a new and dramatic account this morning about the rapid progression of Creutzfeldt-Jakob disease affecting her husband. According to her, in just 24 hours the neurological condition worsened significantly, with additional vision loss. "From yesterday to today, he has already lost more of his vision," the wife stated in a recorded message shared on social media. The statement came with an urgent appeal: the family is requesting Lito's inclusion in experimental clinical studies, hoping that some therapy in the testing phase could slow the progression of the rare and currently incurable disease. The influencer, diagnosed weeks ago with the prion disease, already presented classic symptoms such as mental confusion, loss of coordination, and cognitive deterioration.

• Now, the rapid worsening of his vision reinforces the fulminant nature of Creutzfeldt-Jakob disease, which usually leads to partial or total blindness in advanced stages, before progressing to complete loss of motor functions and death. His wife explained that the medical team following the case has already exhausted the available palliative care options and that the only prospect of any intervention lies in research protocols still underway in Brazil and abroad. She asked for support from the medical community, research institutions, and health authorities to expedite the evaluation of Lito Sousa as a candidate for these studies. Friends, followers, and other influencers reacted with solidarity, sharing the appeal and reinforcing the request for help.

• Neurology experts interviewed by media outlets warn that Creutzfeldt-Jakob disease has an unpredictable and extremely rapid progression, making any attempt to include a patient in clinical trials a race against time. The family reiterated their request for respect for their privacy and thanked everyone for the support received so far, while continuing to explore all possible alternatives to offer some relief to Lito Sousa during this critical stage of the disease.

A empresária Mila Seidl, esposa do influenciador Lito Sousa, fez um novo apelo aos brasileiros nas redes sociais. Ela pediu ajuda para conseguir uma vaga em um estudo da Universidade de Harvard ou em pesquisas da Ionis Pharmaceuticals para o tratamento da doença de… pic.twitter.com/Bkrl5Ognjz — Gazeta Brasil (@SigaGazetaBR) August 22, 2026

Video by GAZETA BRASIL